Learning About Death, Dying and Hospice

• American Hospice Foundation

• National Hospice and Palliative Care Organization, NHPCO

• On Our Own Terms, Moyers on Dying’ PBS

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Resources for Families and Patients

• Meals on Wheels

• Haven for Hope

• Mental Health Association

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Caregiving and Advocacy Resources

• Grief and Loss Resources provides information on making funeral arrangements, dealing with financial matters, navigating the grieving process, and locating community bereavement resources

• The American Hospice Foundation offers resources and links for the grieving.

• Americans for Better Care of the Dying (ABCD) is a nonprofit organization dedicated to ensuring that all Americans can count on good end-of-life care. ABCD’s primary goals are to build momentum for reform, explore new methods and systems for delivering care and shape public policy through evidence-based understanding.

• Association for Death Education and Counseling (ADEC) is a multidisciplinary professional organization dedicated to promoting excellence in death education, bereavement counseling and care of the dying. Based on theory and quality research, ADEC provides information, support and resources to its multicultural members and, through its membership, to the public. ADEC offers a program leading to certification in Thanatology: Death, Dying and Bereavement (CT).

• Beliefnet is a multifaith independent site that features articles by the nation’s most accomplished and respected journalists in the fields of religion, spirituality and morality.

• Cancer.net The patient information Web site of the American Society of Clinical Oncology (ASCO) is designed to help patients and families make informed healthcare decisions. The site provides information about more than 85 types of cancer, clinical trials, coping, side effects, a “Find a Cancer Doctor” database, message boards, patient support organizations and more.

• CareGiver is an information resource on long term care.

• Completing a Life is an interactive Web site that invites patients and families to learn about the practical, emotional, spiritual and medical issues faced by those dealing with advanced illness.

• Dying Well offers resources for people facing life-limiting illness, their families, and their professional caregivers.

• ElderWeb is an award-winning site and is one of the oldest and largest eldercare sourcebooks on the Web.

• The End of Life is a National Public Radio series featuring the American Hospice Foundation in some of the reports.

• GriefandLoss.org offers a variety of resources and information on bereavement issues. Call toll-free at 1-866-797-2277 between 9 a.m. and 9 p.m. (Eastern Standard Time) daily for grief support from trained volunteers who themselves have experienced the death of a loved one.

• Growth House, Inc. offers resources related to life-threatening illness and end-of-life care.

• Medicare Today is a broad-based partnership representing seniors, patients, healthcare groups, employers and others. Its mission is to educate and inform the public about the new Medicare prescription drug coverage and other benefits.

 

Caregiving and Advocacy Resources

• Grief and Loss Resources provides information on making funeral arrangements, dealing with financial matters, navigating the grieving process, and locating community bereavement resources